I survived another round of chemo, with great thanks to KV for picking
me and waiting around for my infusion to be complete. Things ran slowly
yesterday because of trouble processing blood in the hospital lab.
Can
I just tell you how much I hate chemo? I'm trying to love it for its
life giving abilities, but I hate it. (I am trying really hard to count
my blessings, but for the two days after chemo I find it hard.) The
actual process isn't so bad, but the days after suck. I don't feel bad
enough to just sleep 24hours a day, but I am incredibly tired and lazy
and just crappy feeling. I didn't use the steroid yesterday so I felt
worse than usual. The steroid gives me energy, which helps prop me up
for one day, but without it I am a slug. Then on days two and three,
I'm too achey and fatigued to actually do anything, but I'm also bored. Here is what I've done in the last 24ish hours:
8am to 2pm - chemo
2pm to almost 6pm - lay in bed while listening to the radio. Make some short phone calls.
6pm to 11pm - watch tv. J gave me dinner on a lap tray.
11pm to midnight - read book and fall asleep while reading.
3am - wake up and turn out light
8am - wake up and take anti-nausea and go potty
11am - wake up again to phone call from mom (note, I have just slept about 11 hours)
11am - 1pm - take and make a bunch of phone calls
1pm to about 2pm - eat morning mush and read today's Strib
2pm until now - sit in bed, propped against pillows, and read my news feed which has swelled to over 300 items
About 3pm eat a piece of cheese and drink a Naked juice. Chew two fiber tablets.
Sometime during last 2ish hours I ordered the new T-mobile/Google phone (YAY!)
J will be home around 6 and he'll make dinner and I'll eat in front of the TV again.
Boring, boring, boring. As much as I like reading and tv, there is too much of a good thing. Also, I am finding it hard to read "tough" stuff. I feel like an idiot. I bought Anathem
and am struggling to plow through it because sometimes my mind can't
focus and other times the book is too heavy. Can you imagine being so
feeble that you can't hold up a book? I mostly read in bed and can't
lay on my stomach because of the port. Try laying on your side and
holding up a 10lb book with one hand.
So, let's move on to other
things. Eating and food. My mom's chemo, far tougher than mine, caused
her to completely change her diet during her treatment. She had lots of
trouble with mouth-feel. If she couldn't fathom the texture of certain
things, even if the taste was appealing, she didn't eat them. Thus, she
quit eating a lot of her favorite foods. That hasn't been my problem
yet. But there are things I just can't eat. For example, I can eat pork
if it is shaved or in BBQ sauce. If it is a piece of pork like a chop
or loin, I can't. I don't like the look of it. And I really can't
predict what I won't want until I see it. Other times, I just don't
feel like eating or I don't feel hungry. I usually force myself to eat
regularly, but I don't always eat much in the middle of the day. Right
after chemo, I have to limit my intake of anything but high fiber
foods. So, I eat a lot of fruit, drink Naked juices, and eat some
chicken at night. Also weird is what I crave. I could eat pizza (not
frozen) every day, particularly if it is really saucy. I can't eat
frozen pizza because I can't stand the sight of the melted fakey cheese. I am also into ice cream. I have always loved ice cream, but my desire for it now is not normal. But, it can't be too melty. I can't eat melty ice cream.
Did I mention I ordered a new phone? YAY!
That's all for this installment of what's wrong with me.
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